Cerebral
Palsy Information -Frequently Asked Questions:
What are the different types of Cerebral
Palsy?
There
are four main types of Cerebral Palsy:
Spastic, Ataxic, Athetoid, and Mixed. The first and most common is spastic.
With this type of Palsy, the muscles are
in a constant state of spasticity. The
result is that a child will exhibit stiff
and jerky movements. Ataxic Cerebral Palsy
is characterized by low muscle tone and
poor coordination of muscles. A child
will be very shaky and have poor balance
and are unsteady when they walk. Athetoid
Cerebral Palsy occurs when the muscle
tone is mixed -- sometimes too high and
sometimes too low. They may have trouble
holding themselves upright in a steady
position. Those with athetoid Cerebral
Palsy may display lots of movements in
their face, arms and upper bodies that
are involuntary. Mixed Cerebral Palsy
occurs when muscle tone is too low in
some muscles and too high in other muscles.
Approximately ¼ of all cases of
Cerebral Palsy are defined as mixed.
How
does Cerebral Palsy affect a person?
The
manifestations of the disorder can run
the spectrum in regards to its severity
and differs from person to person. An
individual with cerebral palsy will typically
have difficulty with motor tasks and dexterity,
such as writing or cutting with scissors;
experience trouble maintaining balance
and walking; or be impaired by involuntary
movements, such as uncontrollable writhing
motion of the hands or drooling. Others
are affected by medical disorders, such
as seizures or mental impairment. Contrary
to common belief, cerebral palsy doesnt
necessarily cause profound handicap. While
a child with severe cerebral palsy might
be unable to walk and need extensive,
lifelong care, a child with mild cerebral
palsy might only be slightly awkward and
require no special assistance. The disorder
is typically not inherited from one generation
to the next and the disorder is certainly
not contagious.
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What
Are Realistic Goals for a child afflicted
with Cerebral Palsy?
When
thinking of the future for your child,
it is best to be both realistic and optimistic.
Just as with any other child, it is important
to develop skills from the ground up.
It is equally important for the parent
of a child with cerebral palsy to be realistic
about the child's abilities now and for
the future. With professional help, the
parent will slowly develop realistic goals
and it is these goals that the parent,
child, and professionals should dedicate
their effort. Occasionally, difficulties
in communication arise when the parents,
educators, and medical care providers
discuss present abilities. Maximizing
this level of communication allows parents,
educators, and medical care providers
to understand where the child is now and
where their capabilities will be in the
future. An attempt to define future expectations
is usually more important in the teenage
years and beyond, when function is better
defined and the future and potential is
more evident to all parties.
Can
you ever get rid of Cerebral Palsy?
Although
the scientific community searches for
remedies, there is no cure for Cerebral
Palsy. Fortunately, Cerebral Palsy is
not a regressive disorder, meaning that
it does not gradually erode the affected
individuals ability to control the
movements of the body. Numerous treatment
approaches exist that can improve the
body control, including medication, therapies,
and surgical options. There does seem
to be potential for improvement through
Hyperbaric Oxygen Therapy. For more information
on the subject, refer to our page on various
treatments.
Is
Cerebral Palsy ever caused by human error?
Human
error can certainly cause Cerebral Palsy.
During delivery, a doctor must make sure
that the baby gets enough oxygen. Barriers
to this include being stuck in the birth
canal or being caught by the umbilical
cord. As well, when a baby mores itself
into an improper position during childbirth,
a doctor must act immediately and sometimes
order a C-section. If this is delayed
long enough, serious complications and
problems are possible, such as the development
of Cerebral Palsy. The doctor must be
sure to deliver the infant within 24 hours
after the membranes have broken. Finally,
an incorrect administering of drugs can
have harmful effects. In general, improper
medical care or injury to the brain during
the birthing process can have serious
and potentially devastating effects for
a new born.
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What
economic relief is available for families
with affected children?
While
the economic burdens placed upon families
can be great, there is much relief available
to family with disabled children. Up until
the age of three, children qualify for
early intervention programs with professionals
who provide services either in home or
in program centers. Under both federal
and state law, children between the ages
of three and twenty-two are entitled to
special education services. These laws
guarantee that a child with special needs
has access to an educational program.
These education programs can include speech,
occupational and physical therapy services
and placement in public and private school
programs.
Respite
care can provide families with occasional
relief from the daily care of your child.
These services are offered by several
state agencies and are often provided
free. Respite care can provide home-health
aides, homemakers, etc. in your own home
or twenty-four hour care outside the home
in group-care settings.
If
you often transport your child in your
vehicle, you are probably eligible for
handicap plates on your car. Often times
there is an exemption on the sales tax/excise
tax for such a vehicle.
Supplemental
Security Income (SSI) is a federally funded
program that sends a monthly check to
children who the federal government determines
to be disabled. According to the law,
you can still qualify for this program
even if you have assets and income.
Medicaid
is a federally funded program that can
extend medical benefits to disabled children
who meet the eligibility criteria. These
benefits may even be available to those
with substantial incomes if there are
large costs associated with the treatment
of a child stricken with Cerebral Palsy.
Some
special services are available for the
initial diagnosis and/or additional physician
opinions. These would include neurology,
orthopedic and cardiac clinics. Often
times there is no charge to the family
for this initial diagnostic evaluation
and financial assistance may be available
beyond that.
If
you would like more cerebral palsy information
about your legal rights for an affected
loved one, please
contact a qualified attorney.
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